The clock ticked...The year was 1982, and I was 21 years old. Newly married, my husband and I didn't plan on the pregnancy, but we all know how that goes. A bit of nausea and a doctor's office visit later, I found out I was pregnant just a month after the wedding.
Being young and just starting out, we made very little money in our jobs. And there were absolutely no benefits, so...I was uninsured.
What I didn't know was that I had undiagnosed thrombophilia. I should explain. Thrombophilia is a condition whereby a person experiences abnormal clotting of the blood. Complications can include stroke, heart attack, deep venous thrombosis, and pulmonary embolism. For a pregnant woman, thrombophilia can result in miscarriage, preeclampsia, and eclampsia.
A couple of weeks later, I landed in the hospital with extreme dehydration and a condition called pernicious nausea. I had lost 23 pounds in about as many hours, and the veins in my body were so collapsed that they had to try three different places before they found a spot willing to accept an IV. Nobody could say why the sickness was so severe: All they could do was treat my emaciated body with massive amounts of fluids and vitamins.
After a week I was sent home, and believe it or not, the rest of the pregnancy was somewhat uneventful. So, on a chilly February morning, after 23-and-a-half-hour of labor, I delivered a healthy 8 pound 4 ounce boy, and my life had changed forever.
So many things have happened since that morning in 1983. My son's husband and I are no longer married. My mother, 77, has cancer, my father, 81, has Alzheimer’s. My son, 26, is happy and healthy. Me? Well, I have thrombophilia.
Scientists today are constantly discovering new things about the human condition, helping to unlock the mystery of good medicine. New medications and treatments are making normal lives possible for people who have conditions like thrombophilia.
I lift my eyes to Heaven each day with a grateful heart, knowing that I am alive despite the odds; that I have been given the gift of motherhood; that I have been loved, and loved in return. Yes, that clock keeps on ticking, and with it comes the hope that I can look forward to a long and happy life.
For more information about thrombophilia, visit http://www.fvleiden.org.
Saturday, August 29, 2009
Monday, August 24, 2009
I received this note from David Axelrod at the White House. Now...I don't normally forward things on through email, but this came from, well...The...White...House. So I post it here. Make of it what you will. Feel free to pass it on. And if you have questions or comments, send them to The White House.
The White House, Washington
This is probably one of the longest emails I’ve ever sent, but it could be the most important.
Across the country we are seeing vigorous debate about health insurance reform. Unfortunately, some of the old tactics we know so well are back — even the viral emails that fly unchecked and under the radar, spreading all sorts of lies and distortions.
As President Obama said at the town hall in New Hampshire, “where we do disagree, let's disagree over things that are real, not these wild misrepresentations that bear no resemblance to anything that's actually been proposed.”
So let’s start a chain email of our own. At the end of my email, you’ll find a lot of information about health insurance reform, distilled into 8 ways reform provides security and stability to those with or without coverage, 8 common myths about reform and 8 reasons we need health insurance reform now.
Right now, someone you know probably has a question about reform that could be answered by what’s below. So what are you waiting for? Forward this email.
Senior Adviser to the President
P.S. We launched www.WhiteHouse.gov/realitycheckthis week to knock down the rumors and lies that are floating around the internet. You can find the information below, and much more, there. For example, we've just added a video of Nancy-Ann DeParle from our Health Reform Office tackling a viral email head on. Check it out:
8 ways reform provides security and stability to those with or without coverage
- Ends Discrimination for Pre-Existing Conditions: Insurance companies will be prohibited from refusing you coverage because of your medical history.
- Ends Exorbitant Out-of-Pocket Expenses, Deductibles or Co-Pays: Insurance companies will have to abide by yearly caps on how much they can charge for out-of-pocket expenses.
- Ends Cost-Sharing for Preventive Care: Insurance companies must fully cover, without charge, regular checkups and tests that help you prevent illness, such as mammograms or eye and foot exams for diabetics.
- Ends Dropping of Coverage for Seriously Ill: Insurance companies will be prohibited from dropping or watering down insurance coverage for those who become seriously ill.
- Ends Gender Discrimination: Insurance companies will be prohibited from charging you more because of your gender.
- Ends Annual or Lifetime Caps on Coverage: Insurance companies will be prevented from placing annual or lifetime caps on the coverage you receive.
- Extends Coverage for Young Adults: Children would continue to be eligible for family coverage through the age of 26.
- Guarantees Insurance Renewal: Insurance companies will be required to renew any policy as long as the policyholder pays their premium in full. Insurance companies won't be allowed to refuse renewal because someone became sick.
8 common myths about health insurance reform
- Reform will stop "rationing" - not increase it: It’s a myth that reform will mean a "government takeover" of health care or lead to "rationing." To the contrary, reform will forbid many forms of rationing that are currently being used by insurance companies.
- We can’t afford reform: It's the status quo we can't afford. It’s a myth that reform will bust the budget. To the contrary, the President has identified ways to pay for the vast majority of the up-front costs by cutting waste, fraud, and abuse within existing government health programs; ending big subsidies to insurance companies; and increasing efficiency with such steps as coordinating care and streamlining paperwork. In the long term, reform can help bring down costs that will otherwise lead to a fiscal crisis.
- Reform would encourage "euthanasia": It does not. It’s a malicious myth that reform would encourage or even require euthanasia for seniors. For seniors who want to consult with their family and physicians about end-of life decisions, reform will help to cover these voluntary, private consultations for those who want help with these personal and difficult family decisions.
- Vets' health care is safe and sound: It’s a myth that health insurance reform will affect veterans' access to the care they get now. To the contrary, the President's budget significantly expands coverage under the VA, extending care to 500,000 more veterans who were previously excluded. The VA Healthcare system will continue to be available for all eligible veterans.
- Reform will benefit small business - not burden it: It’s a myth that health insurance reform will hurt small businesses. To the contrary, reform will ease the burdens on small businesses, provide tax credits to help them pay for employee coverage and help level the playing field with big firms who pay much less to cover their employees on average.
- Your Medicare is safe, and stronger with reform: It’s myth that Health Insurance Reform would be financed by cutting Medicare benefits. To the contrary, reform will improve the long-term financial health of Medicare, ensure better coordination, eliminate waste and unnecessary subsidies to insurance companies, and help to close the Medicare "doughnut" hole to make prescription drugs more affordable for seniors.
- You can keep your own insurance: It’s myth that reform will force you out of your current insurance plan or force you to change doctors. To the contrary, reform will expand your choices, not eliminate them.
- No, government will not do anything with your bank account: It is an absurd myth that government will be in charge of your bank accounts. Health insurance reform will simplify administration, making it easier and more convenient for you to pay bills in a method that you choose. Just like paying a phone bill or a utility bill, you can pay by traditional check, or by a direct electronic payment. And forms will be standardized so they will be easier to understand. The choice is up to you – and the same rules of privacy will apply as they do for all other electronic payments that people make.
Learn more and get details:
8 Reasons We Need Health Insurance Reform Now
- Coverage Denied to Millions: A recent national survey estimated that 12.6 million non-elderly adults – 36 percent of those who tried to purchase health insurance directly from an insurance company in the individual insurance market – were in fact discriminated against because of a pre-existing condition in the previous three years or dropped from coverage when they became seriously ill. Click here to learn more
- Less Care for More Costs: With each passing year, Americans are paying more for health care coverage. Employer-sponsored health insurance premiums have nearly doubled since 2000, a rate three times faster than wages. In 2008, the average premium for a family plan purchased through an employer was $12,680, nearly the annual earnings of a full-time minimum wage job. Americans pay more than ever for health insurance, but get less coverage. Click here to learn more
- Roadblocks to Care for Women: Women’s reproductive health requires more regular contact with health care providers, including yearly pap smears, mammograms, and obstetric care. Women are also more likely to report fair or poor health than men (9.5% versus 9.0%). While rates of chronic conditions such as diabetes and high blood pressure are similar to men, women are twice as likely to suffer from headaches and are more likely to experience joint, back or neck pain. These chronic conditions often require regular and frequent treatment and follow-up care. Click here to learn more
- Hard Times in the Heartland: Throughout rural America, there are nearly 50 million people who face challenges in accessing health care. The past several decades have consistently shown higher rates of poverty, mortality, uninsurance, and limited access to a primary health care provider in rural areas. With the recent economic downturn, there is potential for an increase in many of the health disparities and access concerns that are already elevated in rural communities. Click here to learn more
- Small Businesses Struggle to Provide Health Coverage: Nearly one-third of the uninsured – 13 million people – are employees of firms with less than 100 workers. From 2000 to 2007, the proportion of non-elderly Americans covered by employer-based health insurance fell from 66% to 61%. Much of this decline stems from small business. The percentage of small businesses offering coverage dropped from 68% to 59%, while large firms held stable at 99%. About a third of such workers in firms with fewer than 50 employees obtain insurance through a spouse. Click here to learn more
- The Tragedies are Personal: Half of all personal bankruptcies are at least partly the result of medical expenses. The typical elderly couple may have to save nearly $300,000 to pay for health costs not covered by Medicare alone. Click here to learn more
- Diminishing Access to Care: From 2000 to 2007, the proportion of non-elderly Americans covered by employer-based health insurance fell from 66% to 61%. An estimated 87 million people - one in every three Americans under the age of 65 - were uninsured at some point in 2007 and 2008. More than 80% of the uninsured are in working families. Click here to learn more
- The Trends are Troubling: Without reform, health care costs will continue to skyrocket unabated, putting unbearable strain on families, businesses, and state and federal government budgets. Perhaps the most visible sign of the need for health care reform is the 46 million Americans currently without health insurance - projections suggest that this number will rise to about 72 million in 2040 in the absence of reform. Click here to learn more
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Please do not reply to this email. Contact the White House
The White House • 1600 Pennsylvania Ave NW • Washington, DC 20500 • 202-456-1111